About

The Nordic Alliance for Clinical Genomics (NACG) is an independent, non-governmental, not-for-profit Nordic association.

NACG partners work together and learn from each other to raise performance standards. We aim for the responsible sharing of trustworthy data for improved diagnosis and treatment, and as a resource for research.

Goals and activities

NACG aims to

  • Facilitate the responsible sharing of genomic data, bioinformatics tools, sequencing methods and best practices for interpretation of genomic data.

  • Enhance quality of genomic data and processes, and explore methodologies to provide assurance.

  • Understand legal barriers to the implementation of personalised medicine and engage with key stakeholders that influence these barriers.

  • Develop demonstration projects that challenge perceived legal barriers limiting the responsible and ethical sharing of genomic and health data.

  • Build bridges between research and clinical communities, technologies, and practices to foster innovation.

Founding principles

  • Respect for individuals who contribute their personal data for the advancement of human health;

  • Collaboration to share data and information to advance human health;

  • Innovation to develop an environment that accelerates progress;

  • Accountability through developing and demonstrating adherence to best practices in clinical diagnostics, sequencing technologies, and ethics;

  • Inclusivity by partnering and building trust among Nordic and International stakeholders.

Roles and responsibilities

NACG is governed by the Steering Committee, supported by the Secretariat. Work processes and topics are organised by the Working group leaders.

Steering Committee

Dag Undlien
SC Chair
Department of Medical Genetics, Oslo University Hospital
Norway

Ane Yde Schmidt
SC Vice Chair
Center for Genomic Medicine, Rigshospitalet
Denmark

Valtteri Wirta

Valtteri Wirta
SC Vice Chair
SciLifeLab
Sweden

Anna-Kaisa Anttonen

Anna-Kaisa Anttonen
SC Member
Department of Genetics, Helsinki University Hospital
Finland

Eiríkur Briem

Eiríkur Briem
SC Member
Department of Genetics and Molecular Medicine, Landspitali - The National University Hospital of Iceland
Iceland

Ana Nordberg
SC Member
Faculty of Law / Lund University
Sweden

Kasper Thorsen

Kasper Thorsen
SC Member
Danish National Genome Center
Denmark

Vidar Martin Steen
SC Chair
Department of Clinical Science, Universitetet i Bergen
Norway

How we work

The NACG community comes together in workshops twice per year to share experiences and address challenges through hands-on activities.

Members present and explore topics of interest to identify shared challenges and discuss strategies for overcoming them. Prioritised topics are explored in in-depth interactive exercises. Findings and learnings are summarised in workshop summary reports and collaborative papers and contribute to raising performance standards.

A broader NACG symposium is arranged every second year to broaden the perspective and engage with a larger community.