About
The Nordic Alliance for Clinical Genomics (NACG) is an independent, non-governmental, not-for-profit Nordic association.
NACG partners work together and learn from each other to lift performance standards. We aim at responsible sharing of trustworthy data for improved diagnosis and treatment, and as a resource for research.
Goals and activities
NACG aims to
- Facilitate the responsible sharing of genomic data, bioinformatics tools, sequencing methods and best practices for interpretation of genomic data.
- Enhance quality of genomic data and processes, and explore methodologies to provide assurance.
- Understand legal barriers to the implementation of personalised medicine and to engage with key stakeholders that influence these barriers
- Develop demonstration projects that challenge perceived legal barriers that limit responsible and ethical sharing of genomic and health data.
- Build bridges between research and clinical communities, technologies and practices to foster innovation
Founding principles
- Respect for individuals who contribute their personal data for the advancement of human health;
- Collaboration to share data and information to advance human health;
- Innovation to develop an environment that accelerates progress;
- Accountability, developing and demonstrating adherence to best practices in clinical diagnostics, sequencing technologies and ethics;
- Inclusivity by partnering and building trust among Nordic and International stakeholders.
Roles and responsibilities
NACG is coordinated by a Steering Committee and Director of Secretariat. To achieve the goals, work in the alliance is organized through four Working Groups.
Steering Committee
Dag Undlien
SC Chair
Department of Medical Genetics, Oslo University Hospital
Norway
Valtteri Wirta
SC Vice Chair
SciLifeLab
Sweden
Karin Wadt / Morten Dunø
SC Vice Chair
Department of Clinical Genetics, Rigshospitalet
Denmark
Joakim Lundeberg
SC Member
SciLifeLab
Sweden
Jón Jóhannes Jónsson
SC Member
Department of Genetics and Molecular Medicine, Landspitali - The National University Hospital of Iceland/ Department of Biochemistry and Molecular Biology, Faculty of Medicine, University of Iceland
Iceland
Maria Rossing
SC Member
Center for Genomic Medicine, Rigshospitalet
Denmark
Stephen McAdam
SC Member
DNV GL
Norway
Janna Saarela
SC Member
FIMM
Finland
Director of Secretariat
Guro Meldre Pedersen
Director of Secretariat
DNV GL
Norway
Working group leaders
Tony Håndstad
Bioinformatic tools development
Oslo University Hospital AMG
Norway
Oleg Agafonov / Mads Bak
Structural variants
DNV GL / Rigshospitalet
Norway / Denmark
Sharmini Alagaratnam / Kaisa Kettunen
Benchmarking, harmonization and Standardization
DNV GL / Helsinki University Hospital & FIMM
Norway / Finland
Founding partners
The Nordic Alliance for Clinical Genomics (NACG) is an independent, non-governmental, not-for-profit Nordic association.
Copenhagen University Hospital (Rigshospitalet)
Center for Genomic Medicine
Denmark
Copenhagen University Hospital (Rigshospitalet)
Department of Clinical Genetics
Denmark
DNV GL AS
Karolinska Universitetssjukhuset
Centre for Inherited Metabolic Diseases (CMMS)
Sweden
Karolinska Universitetssjukhuset
Clinical Genetics
Sweden
Landspitali - The National University Hospital of Iceland
Department of Genetics and Molecular Medicine
Iceland
Oslo University Hospital
Department of Medical Genetics
Norway
SciLifeLab
Clinical Genomics Stockholm facility
Sweden
Karolinska Institutet
Department of Microbiobiology, Tumor and Cell Biology (MTC)
Sweden
National Genomics Initiative
SciLifeLab
Sweden
Norwegian Consortium for Sequencing and Personalized Medicine
NorSeq
Norway
Host institutions
The Nordic Alliance for Clinical Genomics (NACG) is an independent, non-governmental, not-for-profit Nordic association.
Karolinska Institutet
Department of Microbiobiology, Tumor and Cell Biology (MTC)
Sweden
Copenhagen University Hospital (Rigshospitalet)
Department of Clinical Genetics
Denmark
Copenhagen University Hospital (Rigshospitalet)
Center for Genomic Medicine
Denmark
Oslo University Hospital
Department of Medical Genetics
Norway
How we work
NACG comes together in a series of workshops for hands-on discussions and activities, with updates on national developments.
Members present and explore topics of interest to identify shared challenges and strategies for overcoming them. Prioritized topics are explored in in-depth interactive exercises. Findings and learnings are summarized in workshop summary reports and collaborative papers, and contribute to lifting performance standards.
